National Organization for Rare Disorders

Development Associate (Remote)


PayCompetitive
LocationDanbury/Connecticut
Employment typeFull-Time

This job is now closed

  • Job Description

      Req#: 478782

      About NORD

      The National Organization for Rare Disorders (NORD) is the leading independent nonprofit organization representing all patients and families affected by rare diseases. Come join our team and be part of the transformation and acceleration of research, and the development of evidence-based policy, care support and awareness campaigns to improve the lives of the 30 million Americans impacted by rare diseases. We offer a competitive compensation and benefits package along with a collaborative work atmosphere, opportunities for career growth and development, and flexible telecommuting options. Follow NORD at www.rarediseases.org/ and on Twitter at @RareDiseases.

      Position Summary

      The Development Associate will work in close collaboration with the Vice President of Development, Associate Director of Business Development, and departmental colleagues to manage and help grow NORD’s individual giving and year end campaigns and provide sponsorship support for NORD events and donor management.


      Essential Duties and Responsibilities

      Manage NORD’s individual giving program:

      • Enter data into Donor Management Software, provide regular reports, process monthly subscription fees and align donor records with Salesforce.
      • Respond to donor inquiries via email and phone in a timely manner.
      • Manage communications with individual donors, send acknowledgements and facilitate memorial donations
      • Work with finance to reconcile donations on a monthly basis and provide data on matching donations
      • Oversee logistics for planned giving and NORD’s Rare Giving Society for top donors.
      • In partnership with the department, identify opportunities for growth in individual giving by conducting comparative analysis with other health-focused nonprofits.

      Develop and implement NORD’s End of Year Campaign:

      • Create and implement the project plan, coordinating logistics, planning meetings and ensuring timelines are met
      • Collaborate with marketing on campaign development and promotion

      Provide support for corporate memberships and sponsorships for NORD’s signature events: Corporate Council Rare Disease Day, Rare Impact Awards, Patient & Family Forum, and NORD Summit:

      • Support sponsorship request submissions, contracting, and ongoing calendar of logistics fulfillment
      • Provide day-of support for registrations & booth logistics
      • Support post event outreach to provide supporters with recap reports and reconciliations

      Perform other duties and functions as assigned.

      Education/Experience

      A bachelor’s degree is required

      Minimum of 2 years of development experience, preferably in a non-profit environment

      Experience with individual giving preferred

      Experience in a mission-driven environment and/or healthcare-related field preferred


      Knowledge, Skills and Abilities

      High energy and a passion for NORD's mission is essential

      Excellent communication skills, both written and oral; ability to influence and engage a wide range of donors and build long-term relationships

      Strong organizational and time management skills with exceptional attention to detail

      A professional and resourceful style; the ability to take initiative, and to manage multiple tasks and projects at a time

      Ability to work both independently without close oversight, but also a team player who will productively engage with others at varying levels of seniority within and outside NORD

      Excellent technological abilities including knowledge of Microsoft Office, Teams and Salesforce

      Ability to communicate with a variety of clientele and audiences such as patients, families, executive directors, government officials, researchers and medical professionals.

      Working Conditions

      This position is fully remote with occasional opportunities for travel to NORD events.

      Essential functions are typically performed in an office setting with a low level of noise. Reasonable accommodations may be made to enable individuals with disabilities to perform the essential functions.

      NORD is an equal opportunity employer. All applicants will be considered for employment without attention to race, color, religion, sex, sexual orientation, gender identity, national origin, veteran or disability status.

  • About the company

      The National Organization for Rare Disorders is an American non-profit organization aiming to provide support for individuals with rare diseases by advocating and funding research, education, and networking among service providers.

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